Living with Kartagener’s Syndrome and Primary Ciliary Dyskinesia, two rare progressive diseases, has been a lifelong journey filled with unexpected challenges. One might assume I'd be more prepared for these surprises, but that’s far from the truth.

First of all, this graphic is produced by AI (Adobe Firefly). I know what Pseudomonas actually looks like, but it’s pretty boring. And I’m not interested in purchasing an image of Pseudomonas—it's with me every day of my life

I mentioned cilia a couple of months back, but it’s always good to repeat their mechanics, or in my case, the lack thereof. We have cilia throughout our body, but in the nose,

(What is this cup? You’ll have to read….)

Living with a chronic illness is like dancing with an unpredictable partner. You never know when the next twist or turn will come…

When I was younger, I was reminded every morning at school, during the pledge of allegiance when we put “hand to heart,” that mine was on the opposite side.

So, I was knee-deep in Kartagener’s Syndrome research, and I stumbled upn this gem: “While there is currently no cure for Kartagener’s…

So, in the last post, I poked fun at my photo taken over twenty years ago about needing three things next to me at all times—water, tissues, and lip balm. But I wasn’t kidding. Living with a chronic pulmonary…

I’m pulling back the curtain on a chapter of my life that's been tucked away for too long. Back then, keeping things hidden away was my survival tactic—a shield against the …

Alright, let's dive into the gritty details of the symptoms. It's not the most comfortable topic to lay out, and honestly, it's probably the most exposed I've ever felt, putting it all down in black and white. But hey, my aim is to be as transparent as possible….