Social Media Project.

KinYouSee

My cousin Kerryn is a fantastic photographer. Ever since I’ve known her she has one of her cameras on her. And she never shares her images! Until now. We created an Instagram page titled KinYouSee where we randomly pick a word or phase and each of us post a representation. Mine will be artwork and hers will be a photo.

My brain's "survival mode" to keep me calm was to whip out my phone and take pics like I was on a road trip. Little did I know I would be in the ICU, having surgery and getting discharged 3 weeks later. #raredisease #cilia #PCDawareness #
Can you imagine living with all of these lung diseases because you were born with a rare condition involving Cilia? Most cannot imagine it. I know because I hear people complain about having a basic cold. Try having that cold for the rest of your li
A snippet from a book of poems I am writing based on artwork created with my x-rays back in 2017. . . . . . . #bornthisway #kartagenersyndrome #kartagener #PCD #poetry #poemoftheday #chapbook #primaryciliarydyskinesia #heyinstagram #chronicillnessa
. I’m sharing what it’s like to live with Kartagener’s Syndrome and Primary Ciliary Dyskinesia in terms of Mucus. . Yes the Mucous coughed up from a woman’s point of view and how it’s brought shame to me while being a y
. One of the panels from my x-ray installation. Out of all the panels, this one was meant to be a bit darker and very fragmented. . This one is “broken reflection” and hard to really see it as it was intended. The panels are transparent a
. the Little things that remind you your heart is backward - on the opposite side. . https://www.talbottaylor.com/blog-ks/when-your-heart-is-backward . . . #Situsinversus #dextrocardia #pcd #heartmonitor #chronicillness #raredisease #kartagener #pr
. Why now? I write a blog about living with Kartagener’s after keeping it a secret for 50 years. . While not being able to sleep a few weeks ago, I went out on the sky bridge at Vanderbilt Hospital to find some stuff to photograph. . If you wa
. Throwback to 1998. It was early on in my disease so more manageable, meaning I didn’t have to be tied to my nebulizer as much as I do now. I literally would skip days (I know, bad). But that’s what you do when you’re young and liv
. So what are all the symptoms due to paralyzed cilia? . Chronic Pneumonia (I have areas of pneumonia in my lungs every day of my life)… Chronic Bronchitis (every day of my life)…. Constant wet coughing and blowing my nose… Pulmo
What I learned in School. - Composite x-ray panel based on my own x-rays like the ones posted below. #SitusInversus all my organs are on the opposite side than normal. For real. . . #AbstractArt #DigitalArt #X-rayArt #XraySelfie #DigitalComposite #B
Used the plain blue x-ray of mine to create composite panels like this one titled soaring with butterflies. And yes it is backwards because I am backwards! #SitusInversus all my organs are on the opposite side than normal. For real. . . #AbstractArt
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x-Ray Poem Project