This is Kartagener’s
My journey as a working artist navigating the challenges of Kartagener's Syndrome while embracing a life towards simplicity without losing my creativity.
This is MY story of living with a rare disease I was born with called Kartagener’s Syndrome and PCD. I am not a medical professional. Every post (unless noted) is from me, a patient’s perspective, and my life experiences. I am writing this, well, because it’s time. After 50 years of waiting for someone else to document their life experiences, what they did, and maybe to learn why others survived and others sadly didn’t I got fed up. And decided to do it myself. I created this site February 2024. I will be talking about my past, present, and future, living with this rare disease and not only helping someone else with KS/PCD but anyone living with a progressive chronic illness.
A cup of “Lynne”
(What is this cup? You’ll have to read….)
Living with a chronic illness is like dancing with an unpredictable partner. You never know when the next twist or turn will come…
The ‘flipping little things’ when your heart is backward.
When I was younger, I was reminded every morning at school, during the pledge of allegiance when we put “hand to heart,” that mine was on the opposite side.
Any medical information, research info, and stories from others I find will be actively updated on another site.
I welcome any thoughts, ideas, experiences, or even corrections.
I will never share messages sent to me. They will remain private unless we have discussed incorporating them into this site.
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“If I cannot find a dedicated account from a patient’s perspective of living with this disease, then why don’t I just do it myself?”
— Me
Animated image is from my own x-rays that I turned into acrylic art panels.
©Lynne Talbot-Taylor ©Kartageners.com ©ThisIsKartageners.com
Do not Reproduce.