It starts with my Cilia
In keeping it light, let's dive into the fascinating world of cilia – those microscopic hair-like wonders in our bodies that make things tick. But, hey, I promise not to throw around a bunch of complicated medical terms. Like I said, I’m keeping it light.
So, my cilia, these little hair buddies, decided to be a bit rebellious from birth. They're all tangled up and, basically paralyzed. This phenomenon is now called Primary Ciliary Dyskinesia, or PCD for short. To spice things up, half of PCD pals like me also get a bonus condition called Kartagener’s Syndrome (KS). It's like a package deal – PCD with a side of Kartagener’s. But that’s for another time. Instead, let’s break down the cilia party happening inside our bodies:
What is Cilia?
Imagine tiny hair-like structures on cells doing a graceful wave dance to move fluids, mucous, and debris. They're everywhere—from the brain to all the major organs. But my rebellious cilia have a favorite trouble spot and are wreaking havoc—my lungs.
Lung Drama:
In the lungs, cilia are supposed to work together, beating away and moving mucus. Normally, cilia beat 7 to 22 times per second—that’s a lot of beats! Mine, however, are on strike, leading to a chaotic mucus situation. This invites unwanted guests like respiratory infections and other lung dramas such as Bronchiectasis or COPD. But hold on, we'll save those stories for another day.
Brain Spaces:
In the spacious realms of the brain, cilia help shuffle fluids around. Rumor has it they might do more than just transport fluid—like interpreting how the body feels. Imagine if they could send messages to me: “No pain here!" That'd be a game-changer. But for now, I only find research being done on the subject—nothing definitive.
Ear Acrobatics:
Cilia in the ears are the acrobats, keeping fluid moving for a sense of balance. I occasionally get dizzy spells with 'crystals' doing a jumping act which causes bouts of vertigo and room spinning. But mainly it has caused hundreds of ear infections throughout my life (not fun).
Nose Cleaner:
In the nose, cilia sway back and forth, pulling in odors and sending them to the brain. They are also supposed to sweep out dust and mucous. Unfortunately, mine don’t do any of this. That's why I often joke about not smelling the roses or my food.
Taste Tidbits:
Some of the cilia on the tongue work with the nose helping the brain detect flavors. I mostly taste sugar – no complaints there. But it would be nice if they could figure out why this is.
Then the Rest:
Cilia are also found in the heart, kidneys, and reproductive organs. However, I won't bore you with details since most information is still in the research phase. I can only assume that cilia in the heart, for example, help to keep vessels open and free from plaque buildup. But since the disease is rare, there’s nothing definitive.
It gets a bit mysterious, especially when it comes to any defects in the brain or the heart that may pop up. But, hey, let's keep it positive and save those mysteries for another day. I'm here to share my journey, spill the tea on misinformation, and chat about all the exciting new research I have yet to learn.